My name is David Murison and I live in a lovely little village called Stokesby, which is situated on the Norfolk Broads.
I was born on February 10th 1983 and from a very early age it was clear to my parents that I had some serious health problems. After endless, often wasted, visits to our local GP’s it was eventually discovered that I had a hole in the heart and after a good deal of trauma I was successfully operated on to repair this. Whilst the local GP’S seemed convinced all my problems related to my heart problem I continued to go downhill physically. After one severe bout of illness, when my parents feared for my life, I was taken as an emergency case to the James Paget Hospital in Norfolk and, following loads of tests, I was referred to Addenbrooks Hospital in Cambridge.
I was met there by Dr Pamela W Ewan, who is an immunology specialist. After weeks of tests I was diagnosed with CVID (Common Variable Immune Deficiency) or Hypogammaglobulinemia to give it it’s full name. At last somebody had been able to diagnose my illness and put a name to it.
Unfortunately, there is no cure for the condition but Dr Ewan and her team have been able to stabilize it and I am monitored on a regular basis.
I have to live on a strict drug regime every week to provide my body with some degree of immunity to everyday germs and diseases.
Because of the total number of associated medical problems I have as a result of this condition the medical profession say they have not found anybody else anywhere with the same extreme level of problems. As a result, my condition is sometimes referred to as Murison Syndrome, so I am quite famous!
Whilst I would obviously prefer not to have had so many medical problems in my life I have learnt to be quite optimistic about things.
I treat every day as a gift, but then I guess everybody should as it’s great to be alive isn’t it?
When I was 12 years old and quite poorly I was nominated by the James Paget Hospital in Norfolk to go on the holiday of a lifetime with Dreamflight.I was lucky enough to be selected for the 1997 trip.
This would be the first time I had been out of England, the first time on a plane and the first time I had been away from my Mum and Dad.
It was just the most amazing adventure and what fantastic fun we had. We were cared for 24 hours of the day and nothing was too much trouble for the dedicated team who were responsible for caring for us. They give their time and commitment at no cost and are a massive inspiration to us all.
I made many friends during my holiday and I realized that many of the children had much worse medical conditions than I had. The trip really opened my eyes to all the possibilities life has to offer and how I should try and deal with life’s misfortunes in a positive way, and to never forget there is always somebody worse off than you.
I have lived with my debilitating medical condition for many years and I have just celebrated my 30th birthday!!
The memory of my Dreamflight holiday has stayed with me ever since and I truly believe that the experience has been a major factor in my determination to give life a good shot and to treat each day as it comes.
When I have the opportunity I am keen to raise money for Dreamflight to help ensure other children can enjoy the experiences I was lucky enough to have.
I recently took part in the Larking Gowen City of Norwich Half Marathon in which around 3,000 people ran.
I completed the half marathon in 2hrs 35mins.I wasn’t first but I certainly wasn’t last!!
For me it was a personal challenge to complete the event and I was supported by the great people of Stokesby, who helped me raise £1238 in sponsorship money for Dreamflight.I understand this would pay for 6 children to swim with Dolphins at Discovery Cove during the last day of their holiday. What a wonderful memory it will be for them!
Thanks Dreamflight and keep up the great work.
Kindest Regards
David Murison
My name is David Murison and I live in a lovely little village called Stokesby, which is situated on the Norfolk Broads.
I was born on February 10th 1983 and from a very early age it was clear to my parents that I had some serious health problems. After endless, often wasted, visits to our local GP’s it was eventually discovered that I had a hole in the heart and after a good deal of trauma I was successfully operated on to repair this. Whilst the local GP’S seemed convinced all my problems related to my heart problem I continued to go downhill physically. After one severe bout of illness, when my parents feared for my life, I was taken as an emergency case to the James Paget Hospital in Norfolk and, following loads of tests, I was referred to Addenbrooks Hospital in Cambridge.
I was met there by Dr Pamela W Ewan, who is an immunology specialist. After weeks of tests I was diagnosed with CVID (Common Variable Immune Deficiency) or Hypogammaglobulinemia to give it it’s full name. At last somebody had been able to diagnose my illness and put a name to it.
Unfortunately, there is no cure for the condition but Dr Ewan and her team have been able to stabilize it and I am monitored on a regular basis.
I have to live on a strict drug regime every week to provide my body with some degree of immunity to everyday germs and diseases.
Because of the total number of associated medical problems I have as a result of this condition the medical profession say they have not found anybody else anywhere with the same extreme level of problems. As a result, my condition is sometimes referred to as Murison Syndrome, so I am quite famous!
Whilst I would obviously prefer not to have had so many medical problems in my life I have learnt to be quite optimistic about things.
I treat every day as a gift, but then I guess everybody should as it’s great to be alive isn’t it?
When I was 12 years old and quite poorly I was nominated by the James Paget Hospital in Norfolk to go on the holiday of a lifetime with Dreamflight.I was lucky enough to be selected for the 1997 trip.
This would be the first time I had been out of England, the first time on a plane and the first time I had been away from my Mum and Dad.
It was just the most amazing adventure and what fantastic fun we had. We were cared for 24 hours of the day and nothing was too much trouble for the dedicated team who were responsible for caring for us. They give their time and commitment at no cost and are a massive inspiration to us all.
I made many friends during my holiday and I realized that many of the children had much worse medical conditions than I had. The trip really opened my eyes to all the possibilities life has to offer and how I should try and deal with life’s misfortunes in a positive way, and to never forget there is always somebody worse off than you.
I have lived with my debilitating medical condition for many years and I have just celebrated my 30th birthday!!
The memory of my Dreamflight holiday has stayed with me ever since and I truly believe that the experience has been a major factor in my determination to give life a good shot and to treat each day as it comes.
When I have the opportunity I am keen to raise money for Dreamflight to help ensure other children can enjoy the experiences I was lucky enough to have.
I recently took part in the Larking Gowen City of Norwich Half Marathon in which around 3,000 people ran.
I completed the half marathon in 2hrs 35mins.I wasn’t first but I certainly wasn’t last!!
For me it was a personal challenge to complete the event and I was supported by the great people of Stokesby, who helped me raise £1238 in sponsorship money for Dreamflight.I understand this would pay for 6 children to swim with Dolphins at Discovery Cove during the last day of their holiday. What a wonderful memory it will be for them!
Thanks Dreamflight and keep up the great work.
Kindest Regards
David Murison
